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Support for Muslims Living With Dementia in the UK

 

Dementia affects every community, but many Muslim families face particular challenges: language barriers, stigma, cultural expectations around caring, and difficulties accessing faith-sensitive services.

 

This guide brings together organisations, community groups and resources that offer culturally aware, faith-sensitive, and language-appropriate support for Muslims across the UK.

 

You are not alone. Support exists — sometimes you simply need to know where to look.

 

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Muslim-Specific Dementia Support

 

Muslim Mind Collaborative (MMC)

 

A network of Muslim clinicians, therapists and community leaders who support mental health and ageing in Muslim communities.

They offer:

  • culturally sensitive dementia guidance

  • talks and webinars

  • family advice

  • signposting to local support

 

Often partnered with NHS mental health teams and mosques.

 

Muslim Council of Britain – Health & Ageing Initiatives

 

Provides guidance for mosques and Muslim families on supporting older adults with dementia.

Includes:

  • awareness campaigns

  • training for imams

  • partnerships with Age UK and Alzheimer’s Society

  • discussions on faith, ageing and care

 

Many mosques follow their recommendations when supporting families.

 

Dementia-Friendly Mosque Projects

 

Mosques in cities such as Birmingham, Bradford, Leicester, Manchester and London are now adapting to be more supportive of dementia.

They offer:

  • dementia-aware sermons

  • volunteer befriending

  • social groups for elders

  • family support sessions

  • physical adjustments for accessibility

 

Ask your local mosque whether they participate — many do.

 

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South Asian & Ethnic Minority Dementia Services

 

(Most UK Muslim dementia support is rooted in South Asian community services.)

 

Alzheimer’s Society – South Asian Dementia Services

 

Specialist support for Pakistani, Bangladeshi, Indian and other South Asian Muslim families.

They provide:

  • dementia advisors who understand cultural and religious expectations

  • translated leaflets (Urdu, Bengali, Gujarati, Punjabi, Hindi)

  • carer support groups

  • community outreach

 

Search: “Alzheimer’s Society South Asian dementia support” for your area.

 

Dementia UK – Admiral Nurses for Multicultural Families

 

Specialist nurses who help families navigate:

  • faith-sensitive decisions

  • modesty and personal care

  • Ramadan, prayer routines, and religious needs

  • complex family roles and expectations

 

They offer phone, video or in-person support depending on location.

 

South Asian Health Foundation (SAHF)

 

Works with NHS memory services, GPs and mosques to improve understanding of dementia in Muslim communities.

They produce:

  • educational videos

  • translated materials

  • community dementia workshops

 

Meri Yaadain Dementia Team (Bradford, national model)

 

A pioneering service specialising in Pakistani Muslim families.

Offers bilingual dementia support workers and culturally aware guidance.

Provides home visits, carer groups and mosque-based education.

 

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Local Council & NHS Muslim-Focused Programmes

 

Many councils offer culturally aware dementia services in areas with large Muslim populations.

 

Examples include:

  • Birmingham Dementia Friendly Communities (South Asian projects)

  • Bradford Muslim Dementia Outreach Team

  • Manchester Ethnic Minority Dementia Service

  • Leicester Ageing Together – South Asian dementia support

  • Tower Hamlets & Newham Bengali dementia support workers

 

Ask Adult Social Care or your local Memory Clinic for:

“South Asian / Muslim dementia support workers”

They will know exactly what you mean.

 

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Faith-Sensitive Carer Support

 

UK Muslim Carers Network

 

An informal but active network of Muslim carers supporting parents and relatives with dementia.

Covers:

  • loneliness

  • navigating religious obligations

  • guilt and community stigma

  • balancing caring with work and family

  • grief after the person dies

 

Online groups and phone support available.

 

Age UK Muslim Elders Groups

 

Many Age UK branches run culturally-tailored groups for older Muslims, including dementia awareness sessions, companionship and carer support.

 

Check your local Age UK branch for availability.

 

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Faith-Based Comfort and Identity Support

 

Mindsong – “Sounds of the Soul” Playlist for Muslim Patients

 

A playlist of Qur’anic recitations and nasheeds designed to:

  • soothe anxiety

  • reconnect memories

  • provide spiritual comfort

  • help retain identity

 

Especially powerful for late-stage dementia when faith memories remain strong.

 

Translated Dementia Information

 

Available in Urdu, Bengali, Punjabi, Gujarati, Arabic and Hindi from:

  • Alzheimer’s Society

  • Dementia UK

  • NHS

  • South Asian Health Foundation

  • Meri Yaadain

 

These include simple explanations of symptoms, care strategies and how to get help.

 

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Support from Mosques and Imams

 

Many families first seek help through their imam. Mosques can offer:

  • reassurance that dementia is a medical condition

  • guidance on caring with dignity and faith

  • advice on modesty and gender-sensitive care

  • prayer and spiritual support

  • burial and bereavement guidance

  • help accessing formal services

 

More imams now receive dementia training from charities and NHS teams.

 

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Grief and Bereavement Support for Muslim Families

 

Muslim Bereavement Support Service (MBSS)

 

Specialist support for:

  • widows

  • adult children

  • former carers

  • individuals who feel isolated after the funeral

 

Volunteer-led, confidential, faith-sensitive.

 

AtaLoss.org – Muslim Bereavement Resources

 

Provides signposting to counsellors, groups and Islamic grief resources.

 

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You Are Not Alone

 

Dementia is difficult enough — navigating it without culturally sensitive support can be overwhelming.

There are services, support groups, and faith-aware resources available for Muslim families in the UK.

Further Reading, all provided by AI

1.  How Dementia is Understood in the Muslim Community

2. Caring for a Muslim Parent with Dementia: A Practical Guide

3. Muslim Carers: Your Rights, Support and What to Expect

4. Grief After Dementia in a Muslim Family

 

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